Eyes opened about nystagmus on Wobbly Wednesday

Post date: 
Thursday, 26 November 2015
Category: 
Latest
Staff and volunteers from N-Vison, Blackpool in front of Blackpool Tower turned blue for Wobbly Wednesday

Many people will remember Wednesday 4th November as the day they learned about nystagmus.  A day that started with the launch of two new nystagmus videos One features TV personality Richard Osman, who tweeted: “A film I was proud to help with about what Nystagmus is. If your child has nystagmus I hope this helps” and ended with Blackpool Tower turning blue for Wobbly Wednesday.  The day is called Wobbly Wednesday in recognition of the way the eyes move or appear to wobble in people who have nystagmus.

This year’s event has been hailed as the most successful ever with thousands of people being reached.  Wobbly Wednesday is a mix of fun and education. Northwick the bear with nystagmus visited Southampton General Hospital.  Cake and Jelly gave the day a party feel. Events like an inclusive sports day at Leicester brought families of children with the eye condition together.  In schools children told their peers what it’s like to have nystagmus.  Individuals wobbled their eyes and posted video clips on social media to draw attention to Wobbly Wednesday.

Richard Wilson, Chairman, Nystagmus Network, said: “Wobbly Wednesday 2015 felt like another huge success to me. Well done to everyone who took part in all those fun ways to raise awareness of nystagmus. Thank you all, particularly those youngsters who gave presentations, the future of Wobbly Wednesday is in safe hands.  A simply tremendous effort all round and you should all be very proud of what you have done.”

The new nystagmus videos can be seen online at:  The Way We See: https://m.youtube.com/watch?v=Ey-UD5Vzu_Q and The Professional Perspectives: https://m.youtube.com/watch?v=n0Awdks9Eag <https://m.youtube.com/watch?v=n0Awdks9Eag>

The Nystagmus Network is the UK’s leading charity for nystagmus. It provides support and information as well as encouraging and funding research and raising awareness of the condition. 

For more information about Nystagmus Network, contact John Sanders, Executive Manager, email: john.sanders@nystagmusnet.org Tel: 029 2045 4242.  Helpline: 0845 634 2630, info@nystagmusnet.org  website: http://www.nystagmusnet.org